This past Saturday night, I had the pleasure of attending the annual NW Sarcoma Foundation gala event, Stories from the Vineyard. It’s the foundation’s largest fundraiser of the year, and once again, proved to have very generous supporters and donors from a tight knit community. The “paddle raise” alone garnered $40,000. My guess is that the entire evening raised over $100,000. Shit, my table paid $675 for a cake alone, and we were not the only table to do such a thing 🙂
This year’s event was slightly different for me than last year. Last year, I had an entire table of friends attend with me, and this year, I decided to go alone and just “be” with my Sarcoma tribe, because that is what this group is to me – my tribe of those who understand this disease. For me though, visiting this “tribe” poses its challenges, which I of course let no one see. My carefully placed “mask” hides it all.
This is the annual time when I reconnect with Ed’s doctor, and get to hear updates on the advancements in the t-cell immunotherapy treatments that he is working on. It’s the one night a year I see two of his many nurses who always remember him fondly (no matter how sick he was or how crappy he felt, he was a charmer with the ladies :-)). It’s the moment where he is recognized as a “Sarcoma Angel”…this night his name was projected on a large screen for all to see, along with a list of others. A beautiful song was played in tribute to them, which was beautiful. I did not shed a tear, while you could hear others doing just that. Rightfully so. It’s a night of genuine compassion, stories of survival and passing, hope and sorrow, all in one evening so that we can do better….better research, better care, better awareness and better understanding.
So on this one night of the year, I visit my Sarcoma tribe. I wear my “mask”, smile and not say “fuck you sarcoma”. Although everyone in that room would chant it with me. The weight of the evening stays with me still today, but it is not as heavy as it was last year. Overall, I laugh more and cry less, but this vile disease, I will never understand. I will never accept it. And one night a year, I will visit it, let it visit me, allow myself to go back to an uncertain time, and then I will say goodbye. Until next year….I can only hope there are less people on the “angel” list and more on the “survivor” list.
And now to honor my husband, I will continue sipping my wine. I will watch the Chicago Bears take on the San Diego Chargers. I will smile every time Jay Cutler does something wrong and just think of Ed cursing him…..which makes me smile 🙂 And with that thought, the weight from the weekend lifts….
Strength, Courage, Wisdom….Faith, Love and Hope….